If you're worried about prion diseases look at the research into lichens like Parmelia Sulcata in particular. Very eye opening that the deer populations that were drinking water known to be contaminated by carcasses of cows with Bovine spongiform never contracted the disease. There have been investigations into their diet which featured lichens, which may have played a part in protecting them from prion-like diseases ( Deer populations are also exposed to ticks and thus Lyme bacteria constantly ). One study in particular showed that the lichen parmelia sulcata destroyed prions on contact when put anywhere near it in a lab setting. Even water that previously contained lichens was enough to destroy the prions.
What you're talking about could be part prion-like, part borrelia bacteria, HHV-6 virus, babesia/malarial protozoans, or even part man-made combinations of all 4. Conspiracies abound but there could be reasonable explanations for possible hybridization and transmission. Pulsed antibiotics/anti-malarials like minocycline and flagyl over months do seem to help as might lichens for prion disease. The Buhner protocol apparently has a lot of positive anecdotal reports using herbs like Japanese knotweed and Cat's claw for Lyme-like illness.
I'm going to repeat something that I mentioned earlier in this thread that may or may not be related which involved me taking a small amount of dhea in 2005 ( A mix of 15mg of calcium carbonate with 7mg of dhea ) and niacin within 1/2 an hour of each other and having a near permanent state of GABA/serotonin receptor stimulation that lasted for 6-7 years as a result. I can't explain why. I had overall relaxed mood, no anxiety, lowered sex drive as if I'd taken an SSRI which I've never taken. There may have been serotonin syndrome symptoms overlapping with some of this without even without taking anything. Then when this wore off slowly between 2011-2012 anxiety slowly came back, sleep disruption, seizures, new pronounced ocd and a very nervous and low functioning adrenal state. ( Low dhea, gaba and serotonin, dopamine seemed pretty evident too ).
I suspect a Lyme-like illness in my case which began just before all of this with a swollen gouty arthritic knee in which the swelling and pain were excruciating and would rise up in 2-3 hours and cause near shock-wave convulsions of pain. They would happen every 4 months and slowly dissipated over a period of 4-5 years. These pain episodes were later controlled well with regular old ibuprofen. Later I developed spine/neck stiffness and several neurological pains, cluster headaches, aural migraines, gut inflammation, motor nerve problems and cerebral hypoxia and dysfunction. Transient, migrating intense flareups of pain that would come out of nowhere and disappear over and over.
I took antibiotics over the past year which seem to be keeping things at bay or reducing the bacterial load ( whatever strain was never confirmed through blood tests ).
Lichens are generally harmless and I will be starting some shortly as well. As well as plenty of probiotics with bifidobacteria to keep the gut/immune function stabilized. Along with ALCAR, lipioc acid, lecithin ( for choline ), trimethyglycine for mitochondrial function and repair. Also ashwagandha, resveratrol, quercetin and nigella sativa, milk thistle, NAC and whey protein for glutathione production. Never mind the Klonopin ( sparingly ) that I occasionally have to take to combat herx-like acidic brain flare-ups and panic that feel like my blood is on fire. Curcumin, omega 3 and small amounts of melatonin seem to help with these flare ups. These all have been shown to reduce or neutralize quinolinic acid and lipopolysaccharides/endotoxins from killing bacteria. Then liver cleansing every so often to not recirculate what I'm trying to eliminate. A lot of speculation involved here and possibly some woo-woo science but what I'm doing seems to be working. Fingers crossed.
One other feature that is a monkey wrench into this is the fact that massive amounts of vitamin D seem to restore gut, brain and nerve function in many people with anxiety/depression and chronic pain except for those who appear to have vitamin d receptor dysfunction observed in a subset with chronic infection. Vitamin d can make people much better or much worse depending on their bacterial/viral load. It can cause some bad immune flareups. The bacteria might have hijacked your best system for getting rid of it. Pulsed antibiotics with incremental increases of vitamin d could be beneficial.
Hope some of this helps.
Edited by UniqueNewYork, 13 December 2016 - 05:36 AM.